The 12-year-old Bubble Boy, who came out of the isolation hood, touched his mother for the first time before he died.2019-01-13 09:03:19 134 ℃
Bubbles seem fragile enough to burst at one blow, but some people regard them as shelters. < p > < p > almost all their activities are carried out in bubbles.
In the 1970s, a little boy in the United States was famous for living in a bubble all his life.
However, few people remember that his full name is David Philip Vettel. After all, everyone calls him "Bubble Boy".
He must remain isolated from the outside world and enjoy a unique share of air in bubbles.
In fact, what he really feared was not the air, but the viruses and bacteria that pervaded the air and objects.
Almost any pathogen can break through his body defense mechanism unimpeded, and then take away his fragile life.
So he can only stay in this completely sterile and non-toxic shelter plastic bubble, and can't leave for a moment.
But even if he lived so carefully and searched for a quick cure, his life journey lasted only 12 years.
and his last treatment and death before his death gave modern medicine a strong boost.
On September 21, 1971, David was born in a children's hospital in Houston, USA.
But just after landing from his mother's placenta, the lovely little boy was immediately put into a sterile bubble.
His parents and sisters were anxiously waiting for the doctor's notice.
Who expected that David would never be able to come out again when he entered, and he was diagnosed with severe combined immunodeficiency disorder (SCID).
This is a congenital hereditary disease characterized by defects on the X chromosome.
So only boys are at risk of getting sick, while girls are only carriers. Among the three lines of defense of the human immune system, lymphocyte is the most powerful killer weapon in the last line of defense.
T cells and B cells cooperate with each other to kill the invaders such as viruses and bacteria.
and the two kinds of cells in the immune system of SCID patients are defective, which makes the killer mace fail under the influence of gene.
T cells attacking cancer cells
David once had a brother and an eldest son of the family who also suffered from the disease.
He died at the age of seven months, and the shadow lingered in their hearts all the time.
also shows that David's parents carry the SCID pathogenic gene, and the offspring of boys are likely to be sick.
When they were pregnant with David, they knew that the risks still existed, but Catholic religious beliefs did not allow them to have abortions. < p > < p > < p > < / P > < img SRC = "/ 1ydzximg / 0L3kN7rrlx" /> < p > < br > < / P > < p > This hereditary disease is still relatively rare, with only one in 100,000 to one in 50,000 newborns at risk.
and in this family, boys have a 50% morbidity rate.
So when David was born, his family was afraid of repeating the same tragedy besides praying for a smooth production.
But things didn't go as they wanted, and David was unfortunately ill. < p > < p > < p > < / P > < img SRC = "/ 1ydzximg / 0L3kN7G5X5"/> < p > < br > < / P > < p > The stone hanging in the heart of David's family fell and hit his foot hard.
But then a doctor's suggestion gave them a dose of cardiac tonic: you can try to use David's sister Catherine's hematopoietic stem cells to do bone marrow transplantation for David. In this way, David may be able to regenerate normal immune cells from his sister's hematopoietic stem cells.
However, as soon as the dawn dawned, a basin of cold water poured down --- Catherine and David's configuration was unsuccessful. < p > < p > < p > < / P > < img SRC = "/ 1ydzximg / 0L3kN7OfBu" / > < p > < br > < / P > < p > David can only continue to live in bubbles, waiting to find a reliable treatment to let him escape bubbles.
Bubbles provide David with sterile clean space where he spends relatively safe and lonely days.
In order to prevent David from being bored, his parents prepared many toys and snacks for him.
But these items have to go through a lot of checkpoints to get into bubbles. < p > < p > < p > < / P > < img SRC = "/ 1ydzximg / 0L3kN7kHEZ"/> < p > < br > < / P > < p > < p > The items David received must first be packed in the room filled with ethylene oxide gas, and placed at 60 for 4 hours to completely kill bacteria.
and then aerate to remove toxic ethylene oxide.
depends on the size of the object, and the charging time lasts for 1-7 days. After a series of tedious and long steps, items can be sent into bubbles through air brakes. < p > < p > < p > < / P > < img SRC = "/ 1ydzximg / 0L3kN7V6OA"/> < p > < br > < / P > < p > This kind of bubble life which is hard to understand attracts the media to visit. David's tragic deeds were reported, and he was closely watched by the people of the whole country. After learning about David's experience, NASA designed and built a new residence for him to soak through rubber gloves.
Some media filmed a growth documentary for him to show the public the dynamics of his daily life.< p> People not only cherish David's stubborn struggle against illness at birth, but also respect him from it. < p > < p > < p > < / P > < img SRC = "/ 1ydzximg / 0L3kN7AcRQ"/> < p > < br > < / P > < p > With wide attention, SCID has gradually been known and promoted the research of curing diseases in the medical field.
But David has become a real-life version of Truman's World.
His life was almost completely exposed to the public.
People mostly give him sympathy and good wishes, but there are also some weird eyes of yin and yang.
Although his family tried to avoid the influence of media coverage, one day, David saw his photo in the newspaper the day before.
He said excitedly to his mother, "Mom, I'm a star. Stars don't have to clean up bubble houses."
At this time, my mother had to jokingly reply: "Yes, you were a star yesterday, but today's newspaper has no pictures of you, so we still need to sort out today."
For David, before he was 4 years old, he did not feel any difference from others.
He lives well in a bubble, and sometimes someone brings delicious and interesting things. Parents and nurses sometimes play and hug with him through gloves on the bubble wall and live carefree.
But as he grew older, he began to realize that he was different. < p > < p > < strong > I was so fragile that I couldn't leave the bubble, or even get a kiss from my mother.< p> < p > < p > < br > < p > David < p > kissing his mother through bubbles is difficult to break through medical means, but the living environment is always improved. At the age of
3, David can leave the hospital and return to a sterile room specially built for him at home.
This is the first time that he has completed a "short trip" from hospital to home. At the age of
6, NASA made a special spacesuit for him.
David in a spacesuit can even play with his sister outdoors.
but the suit lost interest after seven passes.
because the suit is connected to the bubbles through a 2.5-meter-long catheter, and the wearing steps are extremely complex.
Every time David wears a spacesuit, he needs to complete the transfer between bubbles and clothes through a sterile orbit.
Professionals are also needed to help complete the tedious steps of outgoing connection and dressing.
Even though the continuous improvement of aseptic environment made David more free to move, he could not completely get rid of this damn bubble. Sometimes he was sitting in his shelter with a sad face that was out of keeping with his age.
David lived like this for 12 years, and his hope of being cured was gradually ruined.
Until a month after his 12th birthday, doctors suddenly told the unfortunate family that had developed a bone marrow transplantation technique that could be performed without matching. The news of
is undoubtedly heartening to the whole family and even to the people of the whole country who are closely following David. They continued to extract Katherine's hematopoietic stem cells and operate on David.
The operation was very successful and there was no rejection in David.
This is the first successful treatment for bubble boys, and David is finally ready to start experiencing normal life 12 years late.
Medical technology pulled David back from the edge of death, but unexpected accidents directly pushed him into the ghost gate. Four months after the bone marrow transplantation, David developed lymphoma and died shortly afterwards. The success of
is just around the corner, but in the last step, a fatal "fish out of the net" has also been transferred to David.
The original blood of Catherine contained a dormant and undiscovered virus, Epstein-Barr virus.
The virus reactivated in David, destroying his soon-to-be-repaired immune system and taking his life.
David's life could not be saved after all, but his encounter in the afterlife lightened the dawn of SCID treatment.
because this treatment has achieved successful bone marrow transplantation to a certain extent.
and David's deeds are also widely circulated, so that people can understand the severe living situation of "Bubble Boys".
At that time, 40 to 80 bubble babies were born in the United States every year and suffered a lot. Few of them were able to live beyond two years of age.
David's life has been extended in the study, and he has also become a living experimental product.
He placed the hope of maintaining life on the development of medicine, and the conquest of this disease is also of trans-epochal significance. From then on, people began to pay attention to and promote the progress of SCID treatment. The improved bone marrow transplantation technique has a high success rate.< p> < strong > Today's children are treated with bone marrow transplantation within three months of birth, usually with a 75%-90% chance of being cured.
Even if the fetus is detected to have SCID during pregnancy, it can also be repaired in the mother's uterus.
SCID has been included in routine screening in most parts of the United States.
The death of David in the area of SCID neonatal screening in the United States is also of unprecedented significance. It is the first time that the virus can cause cancer.p>strong>
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